Health Data Utilities represent a new paradigm to support community-centric health data exchange. They serve as a resource to multiple stakeholders within a defined region with expanded purposes beyond clinical data exchange such as public health, social determinants of health, quality improvement, and value-based care.
Explore resources for Health Data Utilities below.
Health Data Utilities (HDUs) are regional or statewide entities that combine, enhance, and exchange electronic health data across care and service settings for treatment, care coordination, quality improvement, health equity, and public and community health purposes. They serve as health equity infrastructure and enable specific, defined use cases with extra protections to ensure patient privacy and protection. HDUs should build on existing technical, organizational, and trust infrastructure in states and regions.
Health Data Utilities, despite their diverse implementations, share several key characteristics:
Neutrality and flexibility in meeting stakeholders’ goals
Designated
authority
Sustainable
financing
Connected region or state geography
Multi-stakeholder, cross-sector participation
Modular infrastructure and advanced technical services
Public-private
partnerships
Inclusive governance
strategy
Leverage state and
local authority
Civitas is excited to share our Health Data Utility resources. It is our mission to advance this field. Please reach out if you need support or would like to request a presentation from the Civitas team on this subject.
As the need for comprehensive health data and interoperability grows, the realms of HIE and health improvement are rapidly changing. This issue brief discusses Civitas Networks for Health and the Maryland Health Care Commission's work to define the key characteristics of emerging HDU models.
In follow up to Civitas Networks for Health and Maryland Health Care Commission’s Health Data Utility Issue Brief, the goal is for the Framework to assist collaborators and entities within states in assessing their current readiness level, identifying next steps, and actioning or furthering implementation of Health Data Utilities.
This four-part research project was conducted by Civitas Networks For Health CEO Lisa Bari, alongside two industry thought leaders, in an effort to understand how states engage with their regional HIEs.
We’ve made a lot of progress over the past few decades to prompt the emergence of Health Data Utilities across the country.
Virginia Health Information (VHI) and the Delaware Health Information Network (DHIN) become the nation’s first officially-designated statewide health information exchanges (HIEs) via laws enacted by their respective states.
The Institute of Medicine (IOM) publishes “To Err is Human” followed by “Crossing the Quality Chasm”, marking a seminal moment in patient safety.
The Office of the National Coordinator for Health IT (ONC) is formed and funded under HHS to promote and speed the adoption of a national health IT infrastructure.
Under ONC, the Nationwide Health Information Network (NHIN) is formed as a foundation for the secure exchange of health information.
The HITECH Act passed, incentivizing use of EHRs, funding the advancement of health information exchange, and extending the reach of HIPAA to protect privacy during rapid digitization.
ONC State HIE Cooperative Agreement Program begins, providing funds to states/territories and State Designated Entities to build capacity for health information exchange.
Congress establishes the CMS Innovation Center (CMMI) to identify ways to improve healthcare quality and reduce costs in the Medicare, Medicaid, and Children's Health Insurance Program (CHIP) programs.
MACRA is passed, consolidating multiple CMS quality improvement programs and creating the Quality Payment Program and Promoting Interoperability Program.
North Carolina enacts legislation requiring providers to connect to the state-designated HIE (NC HIEA, known as NC HealthConnex) on a phased timetable in order to participate in the state Medicaid program
21st Century Cures Act is passed, defining information blocking, mandating the development of TEFCA, and creating requirements for interoperability and exchange.
New York adopts regulations requiring all hospitals and health care facilities using certified EHR technology to connect to one of the state’s six officially-designated regional HIEs (Bronx RHIO, Rochester RHIO, Hixny, Healthix, HEALTHeLINK, and HealtheConnections)
Gravity Project is formed by UCSF SIREN and EMI Advisors, LLC with the goal to build and promulgate SDOH data standards for health and social care interoperability.
Nebraska becomes the first state in the nation to require that all prescriptions be included in its prescription drug monitoring program, creating a “universal PDMP” database managed by state-designated HIE CyncHealth
CMS Interoperability and Patient Access Final Rule and ONC Cures Act Final Rule are published, improving secure patient access to health information.
CDC launches the Data Modernization Initiative (DMI) to modernize national data and surveillance infrastructure.
Civitas Networks for Health is established as a multi-stakeholder national collaborative.
HITECH match funding ends for state HIE services
Civitas publishes the Health Data Utility (HDU) Issue Brief to clarify the role and function of HDUs.
TEFCA is finalized and applications to participate as a Qualified Health Information Network (QHIN) open.
CDC stands up the Office of Public Health Data, Surveillance and Technology to lead the agency’s first ever Public Health Data Strategy.
Maryland’s Chesapeake Regional Information System for our Patients (CRISP) becomes the first state-designated HDU in the nation with the enactment of a new state law upgrading its official HIE status to that of an HDU, with additional health data sharing functions.
CMS releases a Health Equity Strategy.
Civitas, in partnership with the Maryland Health Commission, publishes the HDU Framework Guide for Implementation.
CSRI publishes the HDU Maturity Model.
Sequoia Project and ONC announce the launch of TEFCA and the designation of QHINs.
ONC releases the HTI-1 Final Rule, advancing interoperability, improving transparency, and supporting access, exchange, and use of electronic health information.
HHS releases a new data strategy to improve outcomes in health and human services.
Anticipated federal rulemaking includes ONC’s HTI-2 proposed rule, finalization of disincentives for provider information blocking, updates to HIPAA and other privacy/security rules, exploration of changes to electronic prior authorization and more.
Click on a state to view details
Many Civitas members are utilizing existing health IT, health data, and quality improvement infrastructure to advance Health Data Utilities to further interoperability and improve health and health care delivery. Check out our community stories below.
California Department of Public Health
Read the case study about how the CDPH developed a disease-specific network for lab test reporting in real time.
SCHIO
Learn about how Santa Cruz County is leveraging health information exchange to improve care delivery for California's behavioral health clients.
CyncHealth
Discover how CyncHealth is working with dozens of health care and community-based organizations to build a social determinants of health ecosystem.
Manifest MedEx
Read about how LA county is using longitudinal patient records from Manifest MedEx to care for older adults and individuals experiencing homelessness.
North Carolina Department of Health Information Technology
Discover how North Carolina's HIE – NC HealthConnex – is supporting Black mothers with secure health data exchange.
Chesapeake Regional Information System for Our Patients (CRISP)
Learn how CRISP worked with Civitas Networks for Health to develop an HDU framework.
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